Resources Presented to Charleston Area Cancer Centers
(L-R) Jan Williams-12 yr. Survivor; Julie Houston-President (BTAO); Christine (Patient Educator); Rachel Beard (Admin. Asst.) Dr. Pierre Giglio (Neuro-Oncologist) of MUSC-Hollings Neuroscience Department
600 patient backpacks full of resources were delivered to 3 Charleston Area Cancer Centers-MUSC-Hollings; Roper-St. Francis and Trident. These backpacks bear The Brain Tumor Awareness Organization logo and are full of valuable resources to assist patients immediately upon diagnosis.
The backpacks contain materials from:
- Genentech
- Schering-Plough
- The American Brain Tumor Association
- The National Brain Tumor Society
- The Patient Advocate Foundation
- The Healing Exchange B.R.A.I.N. Trust
- Caring Bridge
- Journey Forward.org
- The Lance Armstrong Foundation
- The National Coalition for Cancer Survivorship
- The Brain Tumor Awareness Organization Resource Booklet
This project was made possible through funding provided by The Zucker Ride for Hope in Charleston, SC. The next ride event is October 25, 2009 To participate visit Zucker Ride For Hope
(L-R) Jan Williams-12 yr. Survivor, Julie Houston-President (BTAO), Laurie Lybrand (Cyberknife Coordinator) Kelly Weeks (ACS Patient Navigator) Roper-St. Francis Radiation Oncology Dept(L-R) Jan Williams-12 yr. Survivor, Julie Houston-President (BTAO) Anne (Support Group Facilitator) Michell Horton (Neuro-Oncology Manager) at Trident Cancer Center
(L-R) Jan Williams-12 yr. Survivor, Julie Houston-President (BTAO) Anne (Support Group Facilitator) Michell Horton (Neuro-Oncology Manager) at Trident Cancer Center
The Brain Tumor Awareness Organization would like to thank all the partners in this project who saw the need for brain tumor patients to have credible resources and access to various assistance programs-delivered to them in a backpack by a Neuro-professional.
With so much information available, it was our goal to connect them directly with those resource partners that could navigate them through their journey with self-advocacy tools, survivorship plans, one-on-one support, financial assistance and more. In addition to these resources, we have provided some simple worksheets to assist patients and their families through various tasks such as budgeting, creating a support network and managing correspondences. These worksheets can be downloaded from our website on our Support page.